Journal entry by Michelle Henry — 20 minutes ago
Today we took our much anticipated trip to Sarah Cannon Research Institute in Nashville. By the way, I saw the doctor that Dr. Gharavi said was the best. I feel good about that!
Unfortunately, the doctor said that I’m not eligible for any clinical trials because my lungs are in such bad shape. I have to take steroids to treat the inflammation in my lungs (caused by radiation), and the steroids alone would make me ineligible. Add to that the fact that my lungs are in bad shape anyway and she said I just don’t have enough reserves in my lungs to risk a clinical trial that could cause further lung damage.
As the doctor reminded me, the good news is we’re not out of options. I’m going to give chemo pills a try. My other option was the same chemo I’ve been doing, and I already decided I don’t want to do that. My treatment will continue here in Knoxville since there was nothing they could offer me in Nashville.
I of course was a little disheartened to hear that we can’t try “the latest and greatest.” David had a good outlook, though. He reminded me that I’m one of the six percent of people with my diagnosis to still be living after five years. We will take that and be grateful.
And, we’re not without hope.
As we drove away from the doctor’s office we passed a hospital with a huge banner on the side that said, “With God all things are possible.” We later ended up behind a taxi with the same message on its rear window.
This past weekend was a good celebration of life. Drew, Sam and Jack spent the weekend with us, David and I celebrated 34 years of marriage, and the YWCA announced that I’m their Spirit Award winner this year. I was flooded with many well wishes and kind words, which couldn’t have come at a better time.
I again thank you for caring and supporting me.